I have to say Michaela was great. Tears while they were putting her IV in but otherwise she did good.
The scope didn't show anything that really stuck out at her. She says she has a little gastritis in her stomach. WebMD describes it this way:
Gastritis is an inflammation, irritation, or erosion of the lining of the stomach. It can occur suddenly (acute) or gradually (chronic).
We are awaiting biopsy results to let us know where we go from here. Still looking at Celiac also. I so don't like waiting, I want answers now. This constant weight loss is going to drive, her and us crazy.
Thank you all for your love and support, keep the prayer coming, hoping for answers soon.
Love to all.
Tuesday, January 19, 2010
Monday, January 11, 2010
Got her blood test results! :(
So they called today with her blood test results, everything tested fine, negative for Celiac, I called them back to talk see if that meant we were doing the colonscopy, they said no. Also told me you can test negative for Celiac and they will find it when they do the scope and biopsy.
Not what I wanted to hear. I just want answers, and they are not coming as fast as I wish. Having a very hard time getting her to eat much and pushing her to intake calories is sometimes, harder than watching her when she is in pain. Anyone with high calorie drinks or snacks, let me know. Everything we had tried she isn't going for.
Thanks for all the prayers, keep them coming, the answer is out there, just need to find it.
Love to all.
Lisa
Not what I wanted to hear. I just want answers, and they are not coming as fast as I wish. Having a very hard time getting her to eat much and pushing her to intake calories is sometimes, harder than watching her when she is in pain. Anyone with high calorie drinks or snacks, let me know. Everything we had tried she isn't going for.
Thanks for all the prayers, keep them coming, the answer is out there, just need to find it.
Love to all.
Lisa
Friday, January 8, 2010
It's Celiac Disease
Ok, so I was guessing on how it was spelled, and several people have asked if it is with a "c" and it is:
Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate gluten, a protein in wheat, rye, and barley. Gluten is found mainly in foods but may also be found in everyday products such as medicines, vitamins, and lip balms.
The only treatment for celiac disease is a gluten-free diet. For most people, following this diet will stop symptoms, heal existing intestinal damage, and prevent further damage. Improvement begins within days of starting the diet. The small intestine usually heals in 3 to 6 months in children but may take several years in adults. A healed intestine means a person now has villi that can absorb nutrients from food into the bloodstream. To stay well, people with celiac disease must avoid gluten for the rest of their lives
(taken from NIH Publication No. 08–4269 September 2008)
Sorry, I hadn't been out on the web to research much yet. I am trying to keep things low key, Michaela is getting very scared and nervous about having the procedure done. I think she is more scared about the IV than anything. Continue with your prayers they all are appreciated.
Love to all.
Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate gluten, a protein in wheat, rye, and barley. Gluten is found mainly in foods but may also be found in everyday products such as medicines, vitamins, and lip balms.
The only treatment for celiac disease is a gluten-free diet. For most people, following this diet will stop symptoms, heal existing intestinal damage, and prevent further damage. Improvement begins within days of starting the diet. The small intestine usually heals in 3 to 6 months in children but may take several years in adults. A healed intestine means a person now has villi that can absorb nutrients from food into the bloodstream. To stay well, people with celiac disease must avoid gluten for the rest of their lives
(taken from NIH Publication No. 08–4269 September 2008)
Sorry, I hadn't been out on the web to research much yet. I am trying to keep things low key, Michaela is getting very scared and nervous about having the procedure done. I think she is more scared about the IV than anything. Continue with your prayers they all are appreciated.
Love to all.
Wednesday, January 6, 2010
Update!
We took Michaela yesterday to Boys Town Research Hospital to see a pediatric GI specialist. We saw a wonderful PA, she took alot of time asking questions, reviewing what had been sent to them by our pediatrician.
Her feeling is it is not gastrointestinal. She believes her intestines are fine, her concern it if she is allergic to gluten or wheat. She had blood drawn to check for Sylliac Disease, also wanted a full panel to check her other counts. The reason she is leaning more toward this is, there is something in your blood when you are allergic things, didn't know this, but hers has been elevated every time they have drawn her blood.
The doctors biggest concern, like ours, is her weight. She was up to 102 yesterday at the office, Hallelujah, but has been floating around 100 or lower at times. She wanted us to push calories, Milk Shakes with real ice cream, Vitamin D milk, Carnation instant breakfast, pediasure. She refuses to even try pediasure. So we will try the others.
Once the lab tests are back we will go back, scheduled on the 18Th of January, for an endoscopy, where they will look at her digestive track and take a few biopsies, Dr. Prestridge will do these procedures. She will have this regardless of what the blood tests show. She wants the blood test back before the procedure, because there is a chance they will have to do a colonoscopy too, but she really does not think it will be necessary.
So for now we wait and treat symptoms, which is the hardest thing for a mom. When she is really hurting it is terrible. She cries and cries and can not get the comfortable.
Please continue to pray for guidance for the doctors that they may find answers, for Michaela as she must endure her pain and the fear of the procedures. Also, I ask prayers for Steve and myself as we are both handling all this in different ways.
Thank you all for your love and support we appreciate it.
Love to all!
Her feeling is it is not gastrointestinal. She believes her intestines are fine, her concern it if she is allergic to gluten or wheat. She had blood drawn to check for Sylliac Disease, also wanted a full panel to check her other counts. The reason she is leaning more toward this is, there is something in your blood when you are allergic things, didn't know this, but hers has been elevated every time they have drawn her blood.
The doctors biggest concern, like ours, is her weight. She was up to 102 yesterday at the office, Hallelujah, but has been floating around 100 or lower at times. She wanted us to push calories, Milk Shakes with real ice cream, Vitamin D milk, Carnation instant breakfast, pediasure. She refuses to even try pediasure. So we will try the others.
Once the lab tests are back we will go back, scheduled on the 18Th of January, for an endoscopy, where they will look at her digestive track and take a few biopsies, Dr. Prestridge will do these procedures. She will have this regardless of what the blood tests show. She wants the blood test back before the procedure, because there is a chance they will have to do a colonoscopy too, but she really does not think it will be necessary.
So for now we wait and treat symptoms, which is the hardest thing for a mom. When she is really hurting it is terrible. She cries and cries and can not get the comfortable.
Please continue to pray for guidance for the doctors that they may find answers, for Michaela as she must endure her pain and the fear of the procedures. Also, I ask prayers for Steve and myself as we are both handling all this in different ways.
Thank you all for your love and support we appreciate it.
Love to all!
Friday, January 1, 2010
Michaela's 13th Birthday Party
Ok so I am a little crazy but what can I say. When Michaela asked if she could have a party with 16 girls I said, yes. I must have been very tired or I think I was just thinking party and they would go home. Well that changed into a sleep over. Lucky for me, only 11 showed up. It is a good group of girls, just a few problems with not getting along. But that is to be expected with 11 girls. Right?
They have ate and drank, not sure how much sugar they have had, don't think I want to know. And are playing games, Wii, etc. in my mom's basement. Oh yeah, thanks mom for letting us invade your house.
Not much else to report.
Keep Miss Michaela in your prayers as we will be traveling to Boystown Research Hospital on Tuesday to see a Pediatric GI specialist. We are going to get to the bottom of this some how some way.
Love to all.
Sunday, December 20, 2009
Merry CHRISTmas!
We want to wish everyone a very Merry Christmas and a safe and Happy New Year.
The kids are excited about going sledding and being with their cousins for the holidays. Have to admit, I am too.
Shopping has been interesting. We, Mom, Marcus and myself, went to South Pointe yesterday and you'd think it was black Friday all over again, actually we decided it was worse than black Friday. I was very sorry I had to go to Micheal's. Inside wasn't bad, the parking lot on the other hand was awful. All the stop signs had cars lined up and getting in or out of there was a nightmare. Yikes. We couldn't even get out of our parking space. I just wanted to get out of there. Not that Target was much better, but not as bad as that.
Michaela is holding her own so far, still up and down with her weight. We are doing some more tests on Monday and Wednesday of this week. Yeah, I know Merry Christmas to her. But we have got to get to the bottom of this. Poor thing was so excited to turn 13 on Thursday, we went to Applebee's, where she wanted to go and she was doing pretty good and by the time her supper came she was hurting, she went to the restroom, they came to sing to her and she wasn't there, I went to get her and she was sobbing in the restroom. I felt so bad, for her, what a way to spend your birthday, not feeling well. I hate that this is taking fun things away from her and that is what hurts the most. I just want her well, this has gone on for too long.
My prayer for 2010:
Dear Heavenly Father,
I come before today to thank you for the joys of 2009. I pray for health for all my family, immediate and extended. Lord please bring Peace to the world, I pray for even one day of peace for those surrounded by violence daily. I pray that all the hardships of the last year are behind all of us and we trust that God has had a purpose for them all and will guide us through to the end and teach us what we need to know. Father, be with all who are traveling this holiday season and with them the whole year through. Grant us wisdom and knowledge to do your will.
In your name I pray,
Amen
Merry Christmas everyone, REMEMBER JESUS IS THE REASON FOR THE SEASON!
The kids are excited about going sledding and being with their cousins for the holidays. Have to admit, I am too.
Shopping has been interesting. We, Mom, Marcus and myself, went to South Pointe yesterday and you'd think it was black Friday all over again, actually we decided it was worse than black Friday. I was very sorry I had to go to Micheal's. Inside wasn't bad, the parking lot on the other hand was awful. All the stop signs had cars lined up and getting in or out of there was a nightmare. Yikes. We couldn't even get out of our parking space. I just wanted to get out of there. Not that Target was much better, but not as bad as that.
Michaela is holding her own so far, still up and down with her weight. We are doing some more tests on Monday and Wednesday of this week. Yeah, I know Merry Christmas to her. But we have got to get to the bottom of this. Poor thing was so excited to turn 13 on Thursday, we went to Applebee's, where she wanted to go and she was doing pretty good and by the time her supper came she was hurting, she went to the restroom, they came to sing to her and she wasn't there, I went to get her and she was sobbing in the restroom. I felt so bad, for her, what a way to spend your birthday, not feeling well. I hate that this is taking fun things away from her and that is what hurts the most. I just want her well, this has gone on for too long.
My prayer for 2010:
Dear Heavenly Father,
I come before today to thank you for the joys of 2009. I pray for health for all my family, immediate and extended. Lord please bring Peace to the world, I pray for even one day of peace for those surrounded by violence daily. I pray that all the hardships of the last year are behind all of us and we trust that God has had a purpose for them all and will guide us through to the end and teach us what we need to know. Father, be with all who are traveling this holiday season and with them the whole year through. Grant us wisdom and knowledge to do your will.
In your name I pray,
Amen
Merry Christmas everyone, REMEMBER JESUS IS THE REASON FOR THE SEASON!
Thursday, December 3, 2009
Michaela Update!
Praise the Lord! She gained 2 pounds. Never thought 2 pounds would make me so happy!
We had an ultrasound done of her kidneys, liver, spleen, gallbladder, all were negative. We are going to try some Zyantac for a few weeks, and see if that works. Only time will tell.
We got to be off all day yesterday(not planned) but we went to the Mall and walked around together. Had a good time, joking and laughing. It has been so long since I have seen her beautiful smile, I got to see it again yesterday and loved every minute of it.
Thanks for the prayers, hopefully we are on the right track.
We had an ultrasound done of her kidneys, liver, spleen, gallbladder, all were negative. We are going to try some Zyantac for a few weeks, and see if that works. Only time will tell.
We got to be off all day yesterday(not planned) but we went to the Mall and walked around together. Had a good time, joking and laughing. It has been so long since I have seen her beautiful smile, I got to see it again yesterday and loved every minute of it.
Thanks for the prayers, hopefully we are on the right track.
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