Wishing I had more to say, besides the same old thing. All tests are negative, but no more answers or ways to comfort her. All her biopsies were normal, no Celiac, no parasites. Did a test to check her Thyroid on Thursday, waiting on those results.
I told Steve on Tuesday night, when she was crying at 11:00 at night. Just once, I wish she would have a episode where it is terrible, so I could just take her into the doctor and say, look at her, see what happens when the pain is so severe. May video tape it once just to show them what is going on.
Weight is holding on, she is at 101 this week, we are trying to not live by the scale, trying to just weigh her on Sunday.
Wish I had more news or could be more positive, right now we are very frustrated. She is tried of tests and we are too. It seems we keep running tests and get no where. One of these times we will hit on the right thing and hopefully find the answers to all this.
Have a great week, thanks for your continued prayers and support.
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